17 November 2022 Changes

Hello to you. How are you today? I hope well. I’m still the same and so is Link – still limping but not coughing thank goodness. Have to force feed him the pill with cream cheese. What a pain lol.

I had been hearing some construction crew noises behind my house and it turns out they have completely leveled out what was my church along the canal. They removed all the plants and trees! Sigh! Changes are always happening aren’t they?

From this
To this

Thank you for your prayers – my dad is doing better.

16 November 2022 Feeling like being on a boat (Mal de barquement disorder)

Hello to you. How are you doing? I’m trying to figure out why I have the feeling of being on a boat all the time – a swaying sensation in my head when I walk or move around. Well I found out about a condition that happens after you get off a boat but can persist or just happen even without having been on a craft. I haven’t been on a boat recently. The sensation just started a few months ago when I was in the hospital. It’s very frustrating. I have to talk to a doctor about it as this is just a self diagnosis right now. It’s called Mal de debarquement disorder. Here is a description I found:

Mal de Debarquement

Mal de Debarquement

NORD gratefully acknowledges the Vestibular Disorders Association and Jeffrey Kramer, MD, Neurology Department, Mercy Hospital and Medical Center, Chicago, IL, for assistance in the preparation of this report.

Synonyms of Mal de Debarquement

  • MDD

General Discussion

Mal de debarquement (MDD) is a rare and poorly understood disorder of the vestibular system that results in a phantom perception of self- motion typically described as rocking, bobbing or swaying. The symptoms tend to be exacerbated when a patient is not moving, for example, when sleeping or standing still. Studies have shown that a brief period of these symptoms is common in healthy individuals after prolonged episodes of passive motion, normally lasting seconds to three days. However, in MDD, significant balance impairment can persist for months to years. Symptoms may diminish in time or may reappear spontaneously or after another exposure. The most common triggers are water-based activities such as ocean cruising. Less common triggers include airplane travel, extended landing travel and sleeping on water beds. Other common complaints of patients with MDD include a sensation of uneven ground below their feet while walking, or feeling as if they are still on a boat. It is rare for MDD patients to have true rotational vertigo or motion sickness.

Signs & Symptoms

The primary symptom is the persistence of a sense of motion and rocking. Some patients may experience fatigue, mood changes and confusion. Imbalance is a common complaint. Symptoms often increase when exposed to fast movements, flickering lights and grocery store aisles. There may be transient improvement in symptoms with re-exposure to passive motion, for example, riding in cars or trains. After completion of the trip, however, the symptoms tend to recur.

Studies have shown that the length of time one is exposed to a motion experience does not determine the severity or duration of the syndrome, but most typical cases are triggered by day trips lasting several days.

Causes

The true cause behind MDD is still unknown. MDD likely results from the body’s balance system inadequately processing and adapting to multiple sensory inputs (visual, vestibular, proprioceptive and cognitive) from the environment once the stimulus (trigger) has ended. It is as yet undetermined as to the cause of the balance system’s inability to appropriately compensate and adapt. How or why this happens remains a mystery.

Affected Populations

The majority of people affected are adult females, although there have been reports of males having the diagnosis. Patients with migraine may have any increased susceptibility through unknown mechanisms

https://youtu.be/Jc8yzCD-y-U – ask Dr Yo- Pppd or mdDs – (which one do I have and why it matters)

Tree all trimmed back

15 November 2022 Trees

Hello to you. How are you? Today I’m having a tree trimming service come out and trim my neighbors tree back from my house. It’s amazing how much growth happened over the summer and early fall. It’s not cheap either but needs to be done.

My neighbors tree reaching over to my house

News about Dad is he’s dealing with a UTI (urinary tract infection). Please keep him in your prayers. His name is Larry.

later – think this might be what I’m dealing with for the swaying:

Mal de Debarquement
It literally means sickness of disembarkment. It refers to an illusion of movement felt as an aftereffect of travel on water most frequently. Most individuals will recover following exposure to motion within a few days. It becomes pathological if it persists more than a month. Most patients note a resolution of their symptoms within 12 months. Middle-aged women are most at risk, following exposure to an unfamiliar movement and removal of the stimulus. The pathophysiological process seems to arise from the brain rather than the inner ear. Functional MRI studies suggest that the brain is able to adapt to an unfamiliar movement but is unable to readapt once the movement has stopped. Most commonly, the patients describe their symptoms as rocking, swaying and disequilibrium and rarely a spinning vertigo. The symptoms are worsened when the subject is in an enclosed space or when they are motionless. They feel better when they are moving or driving. Diagnosis is made after taking an appropriate history and after ruling out other disorders that can cause dizziness. There is no single effective treatment for Mal de Débarquement Syndrome. Short-term use of benzodiazepines and may alleviate the symptoms. However, prolonged use may cause delay in the necessary compensation to recover. Vestibular rehabilitation is controversial. Early exposure to motion may exacerbate symptoms. After a variable wait time for spontaneous resolution it can be suggested. The rehabilitation will focus on readjusting the maladapted vestibulo-ocular reflex.

14 November 2022 Usefulness

Hello to you. Hope this finds you well. Found out last night my Dad is having some troubles with his health – so keeping him in my prayers. I am having some problems of my own. When I walk there is a swaying sensation in my head. Don’t know if it my equilibrium or something in my ears. I find because of this that I am having trouble feeling useful. I don’t think it’s vertigo.

My buddy Link this morning

My Aunt and Uncle helped me figure out how to get Link to take his pills – cream cheese! Seems to be working so far.

11 November 2022 Veterans Day

Not my best but have to get back into practice

Hello to you. Hope this finds you well. Today is Veterans Day. A day that exists because of great sacrifices of so many men and women living and dead. I always say the best way to thank me for my service is to try and make it so there are fewer veterans….more peace and less war. I don’t know if I will ever see that but that is my wish for the world!

When I was an AIC

10 November 2022 The Car

Hello to you. It seems like when one thing happens another follows suite. This morning I tried to start my car and it was a no go – battery is dead. So now I have to buy a new battery which sucks! Thankfully my Aunt and Uncle are able to help me out with getting to the auto parts store to buy a new battery.

Have to stay in a space of gratitude – it will all work out.

Red skies

9 November 2022 Stamina Continued

Hello to you. Hope this day finds you well. I’m doing ok just dealing with the usual stuff plus low energy levels – stamina. I really have gotten weaker after my stay in the hospital. Gradually trying to build it back up. Link is still limping but has such a positive attitude about it! Please keep him in your prayers.

I want to say how grateful I am that things are even if I hope for better. I’m home with Link and have loving family and friends. Thank you for your prayers and support through all of this.

https://youtu.be/Vjr6hwNuKBo – Mei-lan Live sound healing- heart awakening series- love is letting go

8 November 2022 Routines

Hello to you. How are you today? I’m up and at em but still having to figure out routines. Having a schedule of when to get up and when to go to bed and life in between. Link is a big part of all of that especially with his leg bothering him the way it is now.

I am kind of having a crisis of faith too. It was Jesus I cried out to when the police tazzed me with electricity the day I was picked up. There was no rescue just going to the hospital. Was that his reply to my plea? I really thought it was time for the end of the world that day. I will have to see what the days ahead hold for me.

https://youtube.com/shorts/cJMSE8a5cXs?feature=share – trying my hand at a YouTube short.

7 November 2022 Wreckage (recovery after manic episode)

Hello how are you? I’m doing ok. Still working through the wreckage after what happened. Last night was my first night alone in the house. Link ate the ham for his pills but didn’t want to this morning. He’s too smart. He hasn’t been eating his regular dog food which concerns me. I’m having the internet people come out today as it’s inoperable. It got ripped from the wall for some reason during all the chaos.

I’m so frustrated with myself. My little house was so nice and now there is damage to it that has to be repaired eventually. This is the aftermath of a manic episode. I look at some of the stuff that happened and it makes no sense at all. What was I thinking?! Just not in my right mind I guess is the only answer. Just have to keep taking it one day at a time.

https://youtu.be/5utEmwxi3xs – we know where you go Blue October

6 November 2022 Stamina

Hello to you. How are you today? I hope well. I’m trying to get back to my life again and finding I’m really weaker than I’ve ever been . My stamina is real low so it takes a lot more energy to do things than it used to. I’m going to have to work at it and build my strength back up over time.

Link is doing better but is a little bear about taking his meds for pain! He hates it. I’m hoping some deli meat will entice him about it tonight.