Hello to you. Hope this finds you well. Each day my online therapist app Better Health has a suggested topic. Todays topic had to do with what communication looks like. A phrase that came to mind almost immediately was “use your words.” Sometimes I don’t have the clarity I’d like to properly communicate things. This has been happening as I’ve tried to explain what I’m experiencing on a daily basis with the Mal de barque syndrome stuff. People ask me if I’m feeling better with swaying and stuff and the answer is usually no. Like this morning I had a dizzy spell like vertigo. It was very brief – when I rolled over in bed.
I’m scheduled for an MRI on the 19th of April to see what’s going on inside my head. Hopefully nothing that can’t be fixed.
I’ve had a lot of people praying for me through this. I am so grateful for the love and support from my family and friends. God must have some sort of plan in all this.
Hello to you. How are you today? I hope we’ll. Today started with something new. I decided to try a Steve Harvey sponsored super greens drink product and I got to try my first drink today. It didn’t taste bad at all and I feel pretty good – too soon to tell of course but we shall see. I got 3 months worth so that should give me enough time to see if it’s doing anything. I normally don’t buy stuff like this but something about this resonated with me. I trust Steve Harvey and his testimony really intrigued me to buy his product. The combination of greens is meant to go towards healing at the mitrochondrian cellular level. Here is his testimony from the website for the product:
For years, I had been struggling to keep the energy up needed for my busy schedule. I felt like I was on the sidelines of my life. Not in the game of life. I was struggling with a lack of energy, gut issues, brain fog, and just not feeling right in my own body.
Thanks to my personal health team, they discovered the root cause of my issues started in my cells. Yes, you read that right! My cells. As we age, our cells become damaged, specifically the mitochondria in our cells. These little things are the energy centers or batteries of our cells. Just like when a car’s battery starts to rust, the same thing happens to the mitochondria. This so-called rust damages the mitochondria in our cells and causes loss of energy, gut issues, signs of aging, and so much more. How does this damage happen? Well, to name a few things– the standard American diet, aging, and toxins.
Now, I’m on a mission: to make better health accessible to all, without a prescription. My personal health team created powerful greens powders with a game-changing complex called M-Charge. This complex contains 4 miracle molecules, as I like to call them, that essentially recharge my mitochondria and get them working again. After experiencing L’Evate You, I finally feel better. My best. And I’m no longer on the sidelines of my life and back in the game.
No matter where you are in your health journey, L’Evate You is for you. It’s the tool you need in your toolkit to keep your energy up, be your best self, and feel recharged to do what matters most to you.
Hello to you. How are you? Yesterday I had an audiology appt and unfortunately it didn’t include diagnosing Mal de barque syndrome. The tester was aware of the condition but wasn’t able to diagnose it with her tests. She recommended I see a neurologist. My hearing was ok which was good. I have an appt Monday with my primary care doctor so we will discuss the audiology appt results and recommendations. I am hoping a referral to neurology will be possible. Apparently it’s hard to get an appt.
I am trying to stay positive through this process. There is a part of me that struggles to stay actively engaged in what’s happening. I am not thrilled about being in the “system.” I was trying to avoid this but it seems I cannot avoid it any longer.
Hello to you. How are you? I had a rough night – didn’t get much sleep and Link didn’t either. I let him out and he wouldn’t come back in so I put in my flip flops to go after him and slipped and fell on my butt right away! I didn’t really get hurt too bad thank God just startled. Hopefully the rest of the ice will melt today!
I’m just grateful I wasn’t seriously injured as I broke a wrist before in a previous fall a couple years ago.
Hello to you. How are you today? Today my thoughts turn to something that has never been easy for me to do and that is asking for help. I’ve always been self reliant and independent but since I’ve moved here to Idaho and the health issues that have cropped up I have been having to ask for help and thanks be to God it’s been there!
What is it that keeps us from wanting to ask for help? Pride? Fear of making debts we may not be able to repay? Lately I’ve been asking Jesus for his help a lot. I’m hoping for some miracle that only he can deliver in regards to my health. May be that’s why I’m going through this at all – so that I might get closer to him. Not try and rely on my own strength and understanding. That’s what it seems like anyways.
I’m grateful for my family here helping me get through what I’m going through. They are extensions of Jesus in my life.
My life is challenging these days. With the ears and swaying issues I feel tired a lot of the time. I feel like I want to sleep most of the time. I haven’t heard about my referral yet. God is testing me I think!
Hello to you. How are you doing? I’m trying to figure out why I have the feeling of being on a boat all the time – a swaying sensation in my head when I walk or move around. Well I found out about a condition that happens after you get off a boat but can persist or just happen even without having been on a craft. I haven’t been on a boat recently. The sensation just started a few months ago when I was in the hospital. It’s very frustrating. I have to talk to a doctor about it as this is just a self diagnosis right now. It’s called Mal de debarquement disorder. Here is a description I found:
NORD gratefully acknowledges the Vestibular Disorders Association and Jeffrey Kramer, MD, Neurology Department, Mercy Hospital and Medical Center, Chicago, IL, for assistance in the preparation of this report.
Synonyms of Mal de Debarquement
Mal de debarquement (MDD) is a rare and poorly understood disorder of the vestibular system that results in a phantom perception of self- motion typically described as rocking, bobbing or swaying. The symptoms tend to be exacerbated when a patient is not moving, for example, when sleeping or standing still. Studies have shown that a brief period of these symptoms is common in healthy individuals after prolonged episodes of passive motion, normally lasting seconds to three days. However, in MDD, significant balance impairment can persist for months to years. Symptoms may diminish in time or may reappear spontaneously or after another exposure. The most common triggers are water-based activities such as ocean cruising. Less common triggers include airplane travel, extended landing travel and sleeping on water beds. Other common complaints of patients with MDD include a sensation of uneven ground below their feet while walking, or feeling as if they are still on a boat. It is rare for MDD patients to have true rotational vertigo or motion sickness.
Signs & Symptoms
The primary symptom is the persistence of a sense of motion and rocking. Some patients may experience fatigue, mood changes and confusion. Imbalance is a common complaint. Symptoms often increase when exposed to fast movements, flickering lights and grocery store aisles. There may be transient improvement in symptoms with re-exposure to passive motion, for example, riding in cars or trains. After completion of the trip, however, the symptoms tend to recur.
Studies have shown that the length of time one is exposed to a motion experience does not determine the severity or duration of the syndrome, but most typical cases are triggered by day trips lasting several days.
The true cause behind MDD is still unknown. MDD likely results from the body’s balance system inadequately processing and adapting to multiple sensory inputs (visual, vestibular, proprioceptive and cognitive) from the environment once the stimulus (trigger) has ended. It is as yet undetermined as to the cause of the balance system’s inability to appropriately compensate and adapt. How or why this happens remains a mystery.
The majority of people affected are adult females, although there have been reports of males having the diagnosis. Patients with migraine may have any increased susceptibility through unknown mechanisms
Hello to you. Hope this finds you well. Found out last night my Dad is having some troubles with his health – so keeping him in my prayers. I am having some problems of my own. When I walk there is a swaying sensation in my head. Don’t know if it my equilibrium or something in my ears. I find because of this that I am having trouble feeling useful. I don’t think it’s vertigo.
My Aunt and Uncle helped me figure out how to get Link to take his pills – cream cheese! Seems to be working so far.
Hello to you. How are you today? I hope well. I’m trying to get back to my life again and finding I’m really weaker than I’ve ever been . My stamina is real low so it takes a lot more energy to do things than it used to. I’m going to have to work at it and build my strength back up over time.
Link is doing better but is a little bear about taking his meds for pain! He hates it. I’m hoping some deli meat will entice him about it tonight.