25 November 2022 Black Bear Diner Thanksgiving

Hello to you, how are you today? I’m doing ok. Yesterday was really nice. My cousin and his wife treated me out to Thanksgiving dinner at the Black Bear Diner in Boise. The meal had the traditional turkey and sides only thing missing was cranberries but we thought may be they ran out. The meal even came with pumpkin pie or ice cream. They got really busy by the time we finished eating so we timed it just right. It was so nice to spend some time with them and get a chance to visit. We got a walk in after we got home – the swaying was going on and Link can’t walk very far so we cut it shorter. What a nice memory we made.

23 November 2022 Taxes and Movement

Hello to you. How are you? Today I got my Idaho property tax bill – $672! Not exactly thrilled about that. The other thing today is my swaying issue. I can barely walk it was so bad today. So frustrating . I have an appt on Monday about it. There is a part of me that is skeptical that the medical establishment will be able to help me. We shall see what happens. There is a part of me wondering if this was brought on by the tasering I experienced back in August. They say brain damage can be a side effect.

22 November 2022 A Goal

Hello to you. How are you? I hope well. I just had a telephone consult with my psychologist through the VA and it was pretty intense. She is a short term therapist with goal orientated treatment. I don’t know if she and I will be a good fit or not but will give it a try. She wants me to come up with a goal for treatment. The goal I am thinking of involves leaving the house more. This means leaving Link alone more and that’s hard for me. I don’t like leaving him alone a lot. We shall see what comes up. I talked to her about my swaying sensation being a problem about me doing things. She is going to forward a note about it to my nurse.

Something I’m struggling with with volunteering is driving too. May be there is something I can do that doesn’t involve a lot of driving. I will lift this up to God. I will be useful some how.

21 November 2022 Birthday and Service

Hello to you today. Hope this finds you well. Yesterday we celebrated my Aunts birthday at Olive Garden and boy was it busy there! It was nice to be together though and the meal was really good. She had the tiramisu for her birthday dessert and shared it.

The birthday girl and my Uncle John

On the way home yesterday I got an alert of low tire pressure so I called Perfection Tire and Repair in town this morning and they said they could help me out first come first serve. They aired up my tires for free! I was so grateful about that! Totally unexpected and appreciated.

20 November 2022 Not giving up the faith

Hello to you. How are you today? Today my message has to do with reconciling what happened to me during my episode and not giving up my faith about it. When the police tazzed me like they did I screamed out for Jesus to come and help me but he didn’t come. I ended up in the hospital again. Is that what the answer was? Working through other people to help me? This is what a lot of people have said to me. I have had a crisis of faith but realize without Jesus and his people I am so alone.

Church today

I am not giving up on my faith. May be in all that is happening is a humbling I needed – to realize I can’t do this life alone and have to ask for help.

19 November 2022 Gratitude

Message today from Streams in the Desert
My buddy Link

Hello to you. Yesterday was interesting. I’m grateful to my cousin for helping me navigate the Veterans Administration system. I don’t think I could have done it on my own. There are a lot of buildings and processes. My doctor had a lot of questions for me and is wanting to taper me off of one of my drugs to see if the rocking sensation subsides. We shall see. Apparently Haldol is known to have an rocking effect. I haven’t been taking it that long so not sure.

Like I said just feeling grateful that I have a support system here to help me get through what it’s taking to get some balance in my life again. We have a follow up appointment in December.

17 November 2022 Changes

Hello to you. How are you today? I hope well. I’m still the same and so is Link – still limping but not coughing thank goodness. Have to force feed him the pill with cream cheese. What a pain lol.

I had been hearing some construction crew noises behind my house and it turns out they have completely leveled out what was my church along the canal. They removed all the plants and trees! Sigh! Changes are always happening aren’t they?

From this
To this

Thank you for your prayers – my dad is doing better.

16 November 2022 Feeling like being on a boat (Mal de barquement disorder)

Hello to you. How are you doing? I’m trying to figure out why I have the feeling of being on a boat all the time – a swaying sensation in my head when I walk or move around. Well I found out about a condition that happens after you get off a boat but can persist or just happen even without having been on a craft. I haven’t been on a boat recently. The sensation just started a few months ago when I was in the hospital. It’s very frustrating. I have to talk to a doctor about it as this is just a self diagnosis right now. It’s called Mal de debarquement disorder. Here is a description I found:

Mal de Debarquement

Mal de Debarquement

NORD gratefully acknowledges the Vestibular Disorders Association and Jeffrey Kramer, MD, Neurology Department, Mercy Hospital and Medical Center, Chicago, IL, for assistance in the preparation of this report.

Synonyms of Mal de Debarquement

  • MDD

General Discussion

Mal de debarquement (MDD) is a rare and poorly understood disorder of the vestibular system that results in a phantom perception of self- motion typically described as rocking, bobbing or swaying. The symptoms tend to be exacerbated when a patient is not moving, for example, when sleeping or standing still. Studies have shown that a brief period of these symptoms is common in healthy individuals after prolonged episodes of passive motion, normally lasting seconds to three days. However, in MDD, significant balance impairment can persist for months to years. Symptoms may diminish in time or may reappear spontaneously or after another exposure. The most common triggers are water-based activities such as ocean cruising. Less common triggers include airplane travel, extended landing travel and sleeping on water beds. Other common complaints of patients with MDD include a sensation of uneven ground below their feet while walking, or feeling as if they are still on a boat. It is rare for MDD patients to have true rotational vertigo or motion sickness.

Signs & Symptoms

The primary symptom is the persistence of a sense of motion and rocking. Some patients may experience fatigue, mood changes and confusion. Imbalance is a common complaint. Symptoms often increase when exposed to fast movements, flickering lights and grocery store aisles. There may be transient improvement in symptoms with re-exposure to passive motion, for example, riding in cars or trains. After completion of the trip, however, the symptoms tend to recur.

Studies have shown that the length of time one is exposed to a motion experience does not determine the severity or duration of the syndrome, but most typical cases are triggered by day trips lasting several days.

Causes

The true cause behind MDD is still unknown. MDD likely results from the body’s balance system inadequately processing and adapting to multiple sensory inputs (visual, vestibular, proprioceptive and cognitive) from the environment once the stimulus (trigger) has ended. It is as yet undetermined as to the cause of the balance system’s inability to appropriately compensate and adapt. How or why this happens remains a mystery.

Affected Populations

The majority of people affected are adult females, although there have been reports of males having the diagnosis. Patients with migraine may have any increased susceptibility through unknown mechanisms

https://youtu.be/Jc8yzCD-y-U – ask Dr Yo- Pppd or mdDs – (which one do I have and why it matters)

Tree all trimmed back