Hello to you. How are you? Yesterday I had an audiology appt and unfortunately it didn’t include diagnosing Mal de barque syndrome. The tester was aware of the condition but wasn’t able to diagnose it with her tests. She recommended I see a neurologist. My hearing was ok which was good. I have an appt Monday with my primary care doctor so we will discuss the audiology appt results and recommendations. I am hoping a referral to neurology will be possible. Apparently it’s hard to get an appt.
I am trying to stay positive through this process. There is a part of me that struggles to stay actively engaged in what’s happening. I am not thrilled about being in the “system.” I was trying to avoid this but it seems I cannot avoid it any longer.